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HÀ NỘI While more than half of people living with rare diseases in Việt Nam are children, access to rare disease treatment remains limited due to high costs and a lack of comprehensive health insurance coverage. According to the Ministry of Health, Việt Nam has about six million people living with rare diseases, 58 per cent of whom are children. Data shows that an alarming 30 per cent of children with rare diseases die before the age of five. Rare diseases often include metabolic disord ...Read More >
NEW DELHI, 20 August 2025: Dr Vinod K Paul, Member (Health), NITI Aayog today stated that rare diseases are estimated to collectively affect close to 90 million Indians, making them both a health and societal challenge. He emphasized that with only a fraction of the 7,000 rare diseases having approved therapies, indigenous manufacturing, stronger registries, and multi‑ministerial coordination must be prioritized. Addressing the National conference on 'Rare Diseases', organized by FICCI, jointly ...Read More >
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